Living with ALS
With ALS, it’s important to be proactive about managing your disease. There are many steps you can take that may help enhance your quality of life, reduce possible symptoms and even prolong survival.
Tips for Managing ALS*
You're not defined by your ALS. These tips may help you cope with and manage your disease.
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Set personal goals
Decide which goals and aspirations are most important to you, and stick to them. Concentrate on the people and things you love.
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Ask for help
If you ever have a question or need help with a task, don't hesitate to ask your healthcare provider(s) and/or caregiver.
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Plan your next steps
Before leaving the house, always double check you have what you need to be prepared.
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Stay social
Surround yourself with family, friends, and the things you love.
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Customize your home
Consider modifying your home to be more accessible and easier to navigate.
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Explore assistive devices
There are many types of equipment that can help you maintain your independence longer and to be more comfortable.
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Consider your mental health
A trained professional can help you and your loved ones cope with any emotions you're feeling.
Want more information about ALS? Listen on-the-go!
Podcasts are a convenient way to get nuggets of practical information whenever and wherever you are. If you’re looking to learn about strategies to help navigate your disease, including the importance of working with a multidisciplinary care team and other tips, this one is for you:
ALS podcast series: Managing ALS
*The information and advice provided here are general in nature
and are not intended to be a substitute for professional medical
advice or diagnosis. You are strongly encouraged to seek the
advice of your healthcare provider or other qualified professional
with any questions regarding a medical condition.
